Honoring Charlee Nelson’s Fifth Angelversary

March 15, 2019 12:00 pm 1 Comment 24


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Charlee Marcella Nelson passed away from Late Infantile Batten Disease on March 15, 2014. She passed away only two and a half months after turning six years old.

Charlee continues to guide RUN’s mission and has been such an inspiration to our family. She touched our hearts forever when we celebrated her one year Angelversary on March 15th, 2015.

Jeff & Catrina Nelson
March 15th, 2015

March 15th, 2015
March 15, 2015
Utah Jazz National Anthem Buddies
February 28th, 2015
Jericho & Cashlee Nelson
March 17th, 2018
Utah Jazz National Anthem Buddies
March 17th, 2018
Utah Jazz National Anthem Buddies
March 2nd, 2019

We share in the joy of the Utah Jazz together.

Utah Jazz
November 9th, 2018

We share in the heartbreak together.

Thank you to both Catrina and Jeff for your friendship, your love and your unwavering support of our family and RUN’s Mission.

Jericho & Cashlee Nelson
Ava & Lucy Szajnuk
November 9th, 2018
March 2nd, 2019

Thank you, Nelson family, for being a pillar of strength for our family. I truly believe that Charlee brought our two families together for a reason. You are forever our family.

Much love, Gina


ABOUT RUN

RUN stands for the Rare & Undiagnosed Network. We’re a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision: To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.

Contact information:
Gina Szajnuk (Zanik)
Co-founder and Executive Director
E: ginaszajnuk@gmail.com
C: (310) 883-4353
To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey