Our insurance company just approved the WES (whole exome sequencing) analysis for Oskar. Great news! Thank you!!!

However, they DENIED the WES analysis for both Lucy and Gina.

How does an insurance company decide that Oskar’s life is worth saving over Lucy’s life or Gina’s life?  Basically, this is what our insurance company is saying to us today.

Oskar is more important than Lucy and Gina. Ava was more important than all of us.

We have been fighting our insurance company for over a year to approve whole genome sequencing for our family of five.

Denied.

Then, approve whole exome sequencing for our family of five.

Denied.

Then, approve the quint analysis for Ava.

Approved. Thank you. (This is where they sequenced all five of us but only analyzed Ava’s results. They took the results from Ava and looked to see if the rest of us had her same variants.) However, we did not find a solid answer.

Now what?!? Please approve the whole genome sequencing for Ava.

Denied again.

Lessons learned: Ava is more important than her mother, her brother and her sister. Yet, she’s not really that important. She is not worth spending the money on for whole genome sequencing. Oskar is more important than Lucy and Gina. Lucy is not important. Gina is not important. It is not important for Ava, Oskar and Lucy to have a fully functioning mother.