Justin Zanik’s Anniversary of his kidney transplant from polycystic kidney disease (ADPKD)
As we celebrate the anniversary of Justin’s kidney transplant today from polycystic kidney disease (ADPKD), we would like to extend our deepest gratitude to University of Utah Health and their incredible transplant team. Their care and expertise during the transplant and over the past year have been invaluable. Justin has done incredibly well this year and he is back to where he was before the transplant with work, travel and golf. We are so grateful to our good Samaritan donor through the Living Donor Program as well as our family friend that donated into the Kidney Exchange Program, Jeff Hart. We are extremely thankful to Ryan and Ashley Smith and our entire Utah Jazz family for their continued support over the past year. A special thank you to our families and our friends for your love, support and prayers.
Much Love,
Justin, Gina, Ava, Oskar and Lucy
Contact information:
Gina Zanik (Szajnuk)
Co-founder and Executive Director, Rare and Undiagnosed Network (RUN)
Vice Chair, Utah Rare Disease Day Council (RDAC)
W www.rareundiagnosed.org
E ginaszajnuk@gmail.com P (310) 883-4353
To Read: How Utah Jazz GM Justin Zanik found himself fighting for not just his team, but his life – ESPN
To Listen: ESPN Daily: How a Family’s Bond Saved the Jazz GM
To Read: A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed – by Lee Benson
To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey
To Read: “Push Through” by Ava Szajnuk
To Listen: RARE Cast by Global Genes: “A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition”
