Matthew Webster: I recently was invited to a RUN “rare & undiagnosed network” event September 12th with my family. It was a magical experience to see and speak with other families and spouses that are in the same situation as my family without doctors and just being able to enjoy the different activities and smiles of happiness on the children and my wife’s faces because there was no limit to what they could and couldn’t do that day even though they face challenges everyday . I’m filled with joy to be apart of this wonderful new family R.U.N and excited for the future to get families with rare and undiagnosed situations be heard and out to the world. Thanks Gina Szajnuk and the R.U.N Family