Search results for ‘Katie Nuffer’
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Strangers coming together to make change and become a rare and undiagnosed family.
I have been blown away by the generosity of strangers over the past few years. The power of love from friends and family helps more than you will...
Thank you for all of your donations for Harlie Valdez!
RUN wanted to take a moment to thank everyone for their generosity! When we went to visit Harlie at the beginning of the week, we asked her what...
Utah Rare Disease Day 2015 Events start tomorrow! Have you registered?
UTAHRARE.org Events Friday, February 27th 2015: Rare Disease Day State House Event 3:00pm – 5:00pm State Capitol Building, Rotunda 350 North State Street, Salt Lake City, UT 84114 Utah...
Jazz to Host 30 Rare Children at Tonight’s Game (2/23/2015)
RUN wanted to give the gift of the Jazz in support of the Utah Rare events later this week! Thanks to the Jazz player donation program, we were...
Advisory Board
The RUN Advisory Board Mission & Vision Raise awareness for families with children afflicted with undiagnosed or rare diagnosed conditions. Urge insurance companies to reimburse genome sequencing in...
Rare Teen Photo Shoot by Aware of Angels, Utah Rare and RUN!
The RARE TEEN PHOTO SHOOT was a HUGE success! Season Atwater, Aware of Angels, is such a talented photographer! Thank you to Angel Benson, Maddie Benson, Julie Jackson, Kristen Packard, Rebecca...