Search results for ‘Lucy’
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A diagnosis is not coming any time soon for the Szajnuks. Not for Ava, Oskar and Lucy. Not for me.
I met with my specialists for yet another round of appointments over the past week. There are still no answers for me. I had a few more diagnostic...
Lucy’s pain
It breaks my heart to have my three year old daughter continuously wake up during the night crying that her leg hurts. She tells me that her leg...
Insurance company approves exome sequencing only for Ava. Denied Oskar and Lucy.
Our insurance company approved the exome sequencing only for Ava. This is a wonderful step forward for Ava. However, Oskar and Lucy need it as well. We also...
Lucy Szajnuk
This is a section of Lucy’s story from The Szajnuk’s Journey I feel like I missed an entire year of Lucy’s milestones. Lucy started showing similar symptoms in...
Lucy Szajnuk
Lucy Szajnuk has an undiagnosed genetic dysfunction, autonomic neuropathy, small fiber poyneuropathy. She is extremely low in iron. Her ferritin levels are extremely low. She has restless leg...
Today is Undiagnosed Day!
What is Undiagnosed Day? April 29th is Undiagnosed Day. It is a day to celebrate those living with an undiagnosed rare disease and their families as well as...
Watch the #UndiagnosedDay Presentation by Ava Zanik (Szajnuk), Undiagnosed Rare Advocate
“Imagine that you only get three years of good health and they are the three years you don’t really remember because you were too young.” – Ava Szajnuk...
Watch Gina Zanik (Szajnuk) on #UndiagnosedDay and the Challenges Faced by Patients | VibeCast Episode 9
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
Today is Undiagnosed Rare Disease Day! #UndiagnosedDay!
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
Undiagnosed Day is coming up on April 29th!
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....