Search results for ‘Gina’
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Deseret News covers our Rare Children on the Court with the Utah Jazz!
Children with rare diseases get a unique opportunity to stand with players before game By Amy Donaldson, Deseret News Published: Tuesday, Feb. 24 2015 11:20 a.m. MST Updated:...
Children’s genetic disorder baffles doctors
Link to video: Children’s genetic disorder baffles doctors Written by Heather Simonsen PARK CITY — A Park City mother and father are fighting for their children’s lives. Their...
Jazz to Host 30 Rare Children at Tonight’s Game (2/23/2015)
RUN wanted to give the gift of the Jazz in support of the Utah Rare events later this week! Thanks to the Jazz player donation program, we were...
Quint Analysis Results are in. “First step” in a new journey…whole exome sequencing.
Yesterday was an interesting and exhausting day. As you may remember, we were not able to get whole genome sequencing approved through our insurance company for all five...
Szajnuk Update. The journey continues. And, I am very scared.
Dear Family and Friends, I started RUN for my three undiagnosed children. So, I apologize for blogging on it about myself lately. I want to share my journey...
Utah’s Rare Disease Day Events
Utah’s 2015 Rare Disease Day is going to be BIG this year, and we’d love for you to be a part of it. 🙂 February 27, 2015 —...
Katie goes to a JAZZ GAME!!
January 16th, 2015 was the best night I’ve had in a long time. For the first time since I had my surgery I got to go out with...
Winner! Award of Merit from the Accolade Global Film Competition
Gina Szajnuk (USA), The Szajnuk (Zanik) Family Whole Genome Sequencing Mission, Special Purpose Films, Children /Family Programming
Two Hospitals Completely Disagree on my Diagnosis
The “Top Hospital in the Nation” and my “home hospital” completely disagree on what is going on with me. I had to redo some of the previous tests...
Award of Merit from Best Shorts Competition for The Szajnuk (Zanik) Family Whole Genome Sequencing Mission
BEST SHORTS COMPETITION The judges wish to recognize the Award of Merit winners for notable artistic or technical aspects of their project in the categories entered. Gina Szajnuk...