Search results for ‘Ava’
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#UndiagnosedDay is coming up on April 29th!
Please help us raise awareness for the undiagnosed rare disease community by supporting Undiagnosed Rare Disease Day on April 29th! #UndiagnosedDay What is an undiagnosed condition? A child...
A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed
Gina Szajnuk’s kids suffer from undiagnosed disease; so does she. She is determined to find answers, and help By Lee Benson March 5, 2022 5:42 p.m. MST A mother’s unrelenting...
Today is Rare Disease Day
Today is for raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. In the USA, it’s considered...
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...
RUN’s Education Event Presented by PRA Health Sciences
You’re Invited! RUN for Education Presented by PRA Health Sciences and the Rare & Undiagnosed Network Join us for an inspiring evening as some of the nation’s leaders in...
Announcement: Exciting News for our Family!
Our family is incredibly grateful to the Miller family, Steve Starks, Dennis Lindsey, Quin Snyder and the entire Utah Jazz organization for this very blessed opportunity for our...
RUN’s NBA Initiative: Utah Jazz National Anthem Buddies on March 2nd, 2019!
The Utah Jazz honored 32 rare and undiagnosed children on the court as National Anthem Buddies on March 2nd, 2019. Derrick Favors, Rudy Gobert, Joe Ingles and Ricky...
Fox 13 News Utah: Undiagnosed Rare Disease Day
“You have to keep fighting for an answer. You have to keep fighting for a cure.” – Ava Szajnuk Thank you to Fox 13 News for raising awareness...
Today is Undiagnosed Rare Disease Day! #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today! All rare diseases were once undiagnosed. Today is RUN’s Undiagnosed Rare Disease Day! We hope to help raise...