Project UnDiagnosed! Recruiting Parents of Undiagnosed Child or Children for an Anonymous Online Survey

March 9, 2023 8:00 am No Comments 0

Are you a parent of a child with an undiagnosed medical condition?


Clinical psychologist PhD student, Meena, is looking to learn more about the needs and challenges of families who have child/ren with undiagnosed medical conditions, in order to inform better support for these families. She is recruiting 100 parents to participate in an anonymous online survey that takes approximately 30-minutes to complete. See the recruitment flyer attached or click here to take the survey: https://bit.ly/projectundiagnosed.

We thank you for your time and contribution!



For more information, please email mchockalingam@hawk.iit.edu


Contact information: Gina Zanik(Szajnuk)
Co-founder and Executive Director, Rare and Undiagnosed Network (RUN)

Vice Chair, Utah Rare Disease Day Council (RDAC)

E: ginaszajnuk@gmail.com
C: (310) 883-4353
To Read: A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed – by Lee Benson To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk