Register now for our 4th Annual Utah Rare Symposium

January 10, 2018 11:44 pm No Comments 6

Registration for the 2018 Utah Rare Symposium is now OPEN!

Please share with your rare friends and rare disease community!

We have a great day planned and are excited to see you on March 3, 2018.  Register by clicking this link:…



We invite patients, parents, researchers, clinicians, and advocates to join us for our annual Utah Rare Symposium on Saturday, March 3, 2018. Adults, children and families are all invited to attend. Our symposium provides opportunities to learn together, support each other, connect with resources and network. Enjoy some hors d’ oeuvres and register on site for FREE in between 11:30am and 12:30pm. Registration includes free T-shirts for attendees. Various sizes will be available on a first come first served basis.

Symposium Agenda (subject to changes)

11:30-12:30 Registration and hors d’ oeuvres

12:30-12:45 Welcome

12:45-1:15 Intentional Networking

1:15-1:30 Break

1:30-2:45 Breakout Sessions

Undiagnosed- Genetics 101

After the Diagnosis: Rare and Ultra Rare

2:45-3:00 Break

3:00-4:00 Advocacy Panel

4:00-4:45 Resources

4:45-5:00 Closing

Contact Tristin West at [email protected] with any questions, to sponsor the symposium or to reserve a table for your organization/group/company/foundation.

RSVP by February 17, 2018


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