Anne Bruns

Advocate

The Foundation for Atypical HUS

Anne Bruns is a patient advocate for The Foundation for Atypical HUS and the rare disease community as a whole. Her son, Ethan, was diagnosed with this life threatening disease in January 2013 at the age of eight. Empowered by her son’s strength and positive attitude, she speaks around the country at rare disease events to inspire families affected by rare diseases. She believes communication and coordination with physicians, schools and caregivers is necessary to create a game plan for your child and helps parents find the tools to create the perfect team for managing a rare disease. She graduated with a Bachelor of Arts in English from Weber State University in Ogden, Utah and currently works as a pediatric care assistant in the Neuro Trauma Unit of Primary Children’s Hospital.