Posts tagged ‘Gina Szajnuk’

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Praying for a Christmas Miracle – a diagnosis, treatment & cure: Undiagnosed Diseases Network visit next week

December 6, 2016 8:53 pm

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This is a special time of year for holiday fun. This is a time for making gingerbread houses with your classmates and attending your children’s holiday concerts. Unfortunately,...

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RUN wins RareVoice Award from the EveryLife Foundation for Rare Diseases

November 17, 2016 8:36 pm

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Words cannot express how much the RareVoice Award means to me. It was a night that I will cherish for the rest of my life.The Abbey represents the...

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Rare Disease Report: Being Undiagnosed is a Diagnosis (until further noticed)

October 29, 2016 10:20 pm

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Please watch: Being Undiagnosed is a Diagnosis (until further noticed) It first viewed on the Rare Disease Report Gina Szajnuk, Co-Founder and Executive Director, Rare and Undiagnosed Network (RUN) talks...

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Jazz to Host 30 Rare Children at Feb. 27 Game Kids to stand with Jazz, Nets during National Anthem

February 25, 2016 5:56 pm

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Jazz to Host 30 Rare Children at Feb. 27 Game Kids to stand with Jazz, Nets during National Anthem Media interested in interviews and access should contact Gina...

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Bio: Gina Zanik (Szajnuk)

January 17, 2016 4:02 pm

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Gina Zanik (Szajnuk) started her career in the entertainment industry. She worked in Hollywood for over ten years. She supported movie directors, producers, actors, literary agents and executives....

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To Whom It May Concern and To All Mothers:

August 13, 2014 4:18 pm

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2017 Update: The Szajnuk’s Diagnostic Odyssey Written in July 2014: To  Whom It May Concern: I am a mother of three young children, and all three have been diagnosed...

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