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December 6, 2016 8:53 pm
7This is a special time of year for holiday fun. This is a time for making gingerbread houses with your classmates and attending your children’s holiday concerts. Unfortunately,...
November 17, 2016 8:36 pm
4Words cannot express how much the RareVoice Award means to me. It was a night that I will cherish for the rest of my life.The Abbey represents the...
October 29, 2016 10:20 pm
5Please watch: Being Undiagnosed is a Diagnosis (until further noticed) It first viewed on the Rare Disease Report Gina Szajnuk, Co-Founder and Executive Director, Rare and Undiagnosed Network (RUN) talks...
February 25, 2016 5:56 pm
3Jazz to Host 30 Rare Children at Feb. 27 Game Kids to stand with Jazz, Nets during National Anthem Media interested in interviews and access should contact Gina...
January 17, 2016 4:02 pm
5Gina Zanik (Szajnuk) started her career in the entertainment industry. She worked in Hollywood for over ten years. She supported movie directors, producers, actors, literary agents and executives....
August 13, 2014 4:18 pm
142017 Update: The Szajnuk’s Diagnostic Odyssey Written in July 2014: To Whom It May Concern: I am a mother of three young children, and all three have been diagnosed...