November 15, 2017 11:46 pm
4Thank you to the National Ability Center (NAC) for including RUN at your Saluting Our Heroes luncheon. It is always such an honor to be a part of the...
August 10, 2016 3:12 pm
2This is a special invitation to RUN families to be a part of RUN’s upcoming video. RUN has been blessed with the opportunity to have a video donated by The Telling...
June 4, 2016 5:02 pm
0Thank you to Matthew Webster, Ciara Jo Webster and their entire family for their dedication to the Rare & Undiagnosed Network RUN and Utah Rare community. Thank you...
May 17, 2016 5:25 pm
0Volunteers Needed! Barn Party: June 4, 2016 Howdy Cowboys and Gals, We need a few more ranch hands to make the Barn Party a success. Can you help...
May 17, 2016 5:59 am
8This was an intimate event for our Rare and Undiagnosed families to share about their diagnostic odyssey and to network about doctors, treatments and therapies. The activities included...
May 14, 2016 5:16 am
8Time for some Rare FUN today! This is an intimate event for our Rare and Undiagnosed families to share their diagnostic odyssey and to network about doctors, treatments...