Posts tagged ‘Rare Disease’
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Online platform to embrace wide community of people affected by genetic diseases by Deborah Levenson
Connect. Ask. Answer. Discover. RUNmyDNA.com is going to launch soon! Great article on our new platform! We will be having a webinar soon for our early registered users!...
Katie Nuffer Updates RUN on Life as a Senior in High School with MHE
I just wanted to give everyone an update about what has been going on in my life recently. This has been the first school year I have gone...
Fox 13 News: Kearns teen battles rare, incurable disease to return to softball diamond by Tamara Vaifanua
Kearns teen battles rare, incurable disease to return to softball diamond POSTED 10:14 PM, MAY 14, 2016, BY FOX 13 NEWS AND TAMARA VAIFANUA “KEARNS, Utah – A...
Szajnuk’s Whole Exome Sequencing (WES) report by the Rare Genomics Institute: Science 2.0
At Rare Genomics, we are focused on breakthrough discoveries that save lives. Science 2.0 is an innovative approach to conquering rare diseases that puts patients at the center of...
Fox 13 News: “Undiagnosed Day” highlighted in Utah for the first time by Tamara Vaifanua
POSTED 7:40 PM, APRIL 29, 2016, BY TAMARA VAIFANUA SALT LAKE CITY – Gov. Gary Herbert declared April 29 Undiagnosed Day. For dozens of Utah families, it’s a...
“Spiritual DNA is perfect”
Holly Ferrin: “It’s been a while since I have put thought and effort into being engaged with #LDSconf – in other words, it’s been a while since I’ve...