Posts tagged ‘Undiagnosed Rare Diseases’
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...
Undiagnosed Rare Disease Day is April 29, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah! What...
Casting Now: Individuals with Undiagnosed Medical Conditions
Update: Nina Kane, a casting associate, called to let us know that this documentary series for television has officially been picked up and will start filming soon. Nina...
Running for Rare in the 2019 Boston Marathon
The 2019 Boston Marathon is on Monday, April 15th! Dr. Lorenzo Botto is partnering with RUN as his community partner! Hello! My name is Dr. Lorenzo Botto. I am running to help families with...
RUN’s Journey
My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...
RUN wins RareVoice Award from the EveryLife Foundation for Rare Diseases
Words cannot express how much the RareVoice Award means to me. It was a night that I will cherish for the rest of my life.The Abbey represents the...