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May 17, 2018 8:45 pm
12As some of you already know, Netflix and The New York Times are currently filming a documentary series about people with undiagnosed medical conditions. The series is inspired by Dr....
March 16, 2018 5:22 am
11Isabelle was born on St Patrick’s Day 2008. We call her the luckiest girl in the world. She came home on monitors because no one knew why her...
July 10, 2017 8:24 pm
13There comes a time in your life when you have to sit back and watch how quickly the world is spinning around you. You stop, as everything is...
April 27, 2017 5:31 am
11Anyone living with an undiagnosed disease knows how hard it is every single day to persevere. When the disease is invisible, it is even harder because you have to...
April 16, 2017 9:26 pm
0Ava Szajnuk (Zanik) is a 16-year-old sophomore at Skyline High School in Salt Lake City, Utah. She was born a healthy child and hit all of her milestones...
March 21, 2017 10:40 am
4UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk I have three children that are officially diagnosed as Undiagnosed. They have an Undiagnosed...
March 11, 2017 10:17 pm
4Kate Nielsen received a call this morning at 1:00a that her daughter, Rachel, does in fact have a bacteria infection in her central line. She will have it...
March 3, 2017 8:19 pm
3Special thanks to Chef Evan Francois and Photographer Renata Stone. Thank you to everyone at Harmons Cooking School. Thank you to Bob Leibo and everyone at Make-A-Wish. I...
March 2, 2017 9:45 pm
3Stockton: Age 2 Diagnosis: Undiagnosed USA Stockton is our Undiagnosed Medical Mystery, though we prefer to call him our medical miracle. Though his root condition (undiagnosed genetic syndrome)...
February 22, 2017 10:20 am
1My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...