Posts tagged ‘Utah Jazz’
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Utah Rare’s Journey
It was an honor to share my journey with Utah Rare at the Global Genes RARE Patient Advocacy Summit along with Sharon King of Taylor’s Tale and the NC Rare Disease Network. The breakout...
Faith-based movie “Miracles From Heaven” misses opportunity to raise awareness for the majority of rare disease families
Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....
Jazz to Host 30 Rare Children at Feb. 27 Game Kids to stand with Jazz, Nets during National Anthem
Jazz to Host 30 Rare Children at Feb. 27 Game Kids to stand with Jazz, Nets during National Anthem Media interested in interviews and access should contact Gina...