Ava Szajnuk is a 15-year-old freshman at Skyline High School in Salt Lake City, Utah. She was born a healthy child and hit all of her milestones early....

Continue Reading

June 15th marks Ava’s sixth-year anniversary of her first cranial surgery during the summer of 2013. Today, also marks the first day I started to share our journey...

Continue Reading

Hi. My name is Ava Szajnuk. Thank you for joining us today to learn about what it is like to live with a rare or undiagnosed disease. I...

Continue Reading

Welcome to the world of the unknown. My oldest daughter, Ava Szajnuk, is growing up so fast and her voice is so important for the next generation. In...

Continue Reading

  Ava Szajnuk’s CT on November 16, 2017: Technology is beautiful. Ava recently fell and hit her head in gym class. She suffered a head injury and a...

Continue Reading

We are celebrating Ava’s tenth birthday today! I remember the feeling I had the second I found out I was pregnant with Ava. I waited for years to...

Continue Reading

Ava Szajnuk (Zanik) is a 16-year-old sophomore at Skyline High School in Salt Lake City, Utah. She was born a healthy child and hit all of her milestones...

Continue Reading

Ava Szajnuk was asked by her 2nd grade teacher to share something about herself instead of bringing a present to her classmates. Ava wanted to share a video...

Continue Reading

Link to RareArtist.org  “Ava’s View” by Ava Szajnuk, 8 yrs old.  This drawing was when I was 6 years old and in the hospital for weeks. I was looking...

Continue Reading

Angel Benson: I am completely in love with this piece I got at the Aware of Angels Art for Angels show last weekend. It was drawn by an...

Continue Reading