Search results for ‘ciara’
“Our Lucky Leprechaun” by Ciara Luke
“Our Lucky Leprechaun” by Ciara Luke Our little leprechaun, Preston, was born in 2014 on St. Patrick’s Day. He grew like most infants, right along the growth chart...
Ciara-Eosinophilic Fasciitis, Linear Scleroderma, Sjogren’s Syndrome
Ciara Webster: Age 28 Diagnosis: Eosinophilic Fasciitis, Linear Scleroderma, Sjogren’s Syndrome USA, Utah Hi, my name is Ciara. In April of 2006, at the age of 16, I...
Ciara Webster’s update: Congrats to Matt Webster! And, thank you to Harlie Valdez and her family!
Help for Harlie: Ciara Webster: Update on my crazy life…. I had my first 2 day steroid infusion treatment last week. 1,000 MG for 2 consecutive days.. It...
Matthew Webster, Ciara’s husband, shares about his experience at the RUN Day Without Doctors hosted by the National Ability Center
Matthew Webster: I recently was invited to a RUN “rare & undiagnosed network” event September 12th with my family. It was a magical experience to see and speak...
Ciara Webster shares her journey
Ciara Webster: Hi, my name is Ciara. In April of 2006, at the age of 16, I was diagnosed with a rare autoimmune disease known as Eosinophilic Fasciitis. At...
#RUNNBA: Meet our Utah Jazz National Anthem Buddies!
In 2015, we started RUN’s NBA Initiative through the generosity of the Utah Jazz and the Larry H. Miller family. We were so excited to continue our initiative...
Racing for RUN, National Ability Center’s Barn Party and Ava’s Birthday!
Thank you to Matthew Webster, Ciara Jo Webster and their entire family for their dedication to the Rare & Undiagnosed Network RUN and Utah Rare community. Thank you...
“Racing for RUN” by Matthew Webster
“Racing for RUN” by Mathew Webster Maverick Modified #97 Driver: Matthew Webster, age 30 Spouse: Ciara Webster, age 27 Children: McKynlee Webster, age 5 I chose to “Race...
Harlie Valdez: Can anyone guess when this picture was taken? Answer: TODAY!
Ava is in complete awe of this picture. If I would have seen this picture show up on Facebook, I would have stopped and clicked on it. I would...
