Search results for ‘grayson’
Grayson McClure: “23 and Trapped in an Apartment” By JOHN M. GLIONNA
Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...
Grayson McClure. Denied again. Someone please help me!?!
Kay McClure: Well…Merry Christmas to us again. Not really!?! Grayson was turned down for the 4th time from an undiagnosed program. Again, Grayson didn’t “fit” their program and should be...
Update on Grayson McClure. What can a mother do?!
Update from Kay McClure: “Hi Gina, Long days as you well know. Grayson convulses all day. Up to so much medicine in his port:( His exome sequencing was...
Grayson’s Story: We live in the USA where we would have never thought getting care would have been so difficult
Kay McClure:“Grayson, a native Memphian, has been sick since just before his 12th birthday, and he turned 22 years of age in January, 2015. He experienced a normal...
Today is Undiagnosed Day! Join Us to Honor the Undiagnosed Rare Disease Community
All rare diseases were once Undiagnosed. What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease...
Media
RUN in the MEDIA LINKS Rare & Undiagnosed Network Provides Advocacy, Networking and Support for Patients and Families Utah Rare Disease Day Recap 2023 Global Genes Patient Advocacy...
LAS VEGAS REVIEW-JOURNAL: Reno man’s suffering from undiagnosed disease also traps his mother By John M. Glionna
Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...