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A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed
Gina Szajnuk’s kids suffer from undiagnosed disease; so does she. She is determined to find answers, and help By Lee Benson March 5, 2022 5:42 p.m. MST A mother’s unrelenting...
RUN is celebrating World Kidney Day today!
The 2025 campaign #AreYourKidneysOK @worldkidney_day highlights the importance of #earlydetection in preventing and managing kidney disease. Learn more: https://worldkidneyday.org/2025-campaign/ Our journey: https://www.espn.com/nba/story/_/id/39826414/utah-jazz-general-manager-justin-zanik-fighting-life-kidney-disease Thank you all for your continued...
Undiagnosed Rare Disease Day 2025 is coming up on April 29th!
What is Undiagnosed Day? April 29th is Undiagnosed Day. It is a day to celebrate those living with an undiagnosed rare disease and their families as well as...
Join us at the BioHive Utah Live 2025 event on February 20th
We are honored to share our journey at the upcoming BioHive Utah Live 2025 event. Our oldest daughter, Ava, will be joining us as well. We are excited...
“An Evening of Hope” an Upcoming Rare Disease Day Event Hosted by Recursion on February 27th
Please join us on Thursday, February 27 for our “Evening of Hope” Rare Disease Day event, hosted by organizations including Recursion, Rare & Undiagnosed Network (RUN), ARUP, BioHive,...
Rare Disease Day is coming up on February 28th!
TO LEARN MORE ABOUT Rare Disease Day 2025 Contact information: Gina Zanik(Szajnuk)Co-founder and Executive Director, Rare and Undiagnosed Network (RUN) Vice Chair, Utah Rare Disease Day Council (RDAC)...
Utah Rare Disease Advisory Council (RDAC)
About the Utah RDAC The Utah Rare Disease Advisory Council (RDAC) was formed under HB 106 during the 2020 legislative session of the Utah Legislature (Utah code 26-1-41)....
Update: UNDIAGNOSED IS OUR DIAGNOSIS: Living in a Diagnostic Odyssey x 4
By Gina Zanik (Szajnuk) My children: Ava, Oskar, and Lucy have been undiagnosed for the past 14 years as of the end of 2024. All three children and...
Today is Undiagnosed Day!
What is Undiagnosed Day? April 29th is Undiagnosed Day. It is a day to celebrate those living with an undiagnosed rare disease and their families as well as...
How Utah Jazz GM Justin Zanik found himself fighting for not just his team, but his life
Justin Zanik has been the general manager of the Utah Jazz since 2019. AP Photo/Rick Bowmer SALT LAKE CITY — In the days before having cake for her husband’s 49th...
Utah Rare Disease Day 2024 at Recursion HQ
Contact information: Gina Zanik(Szajnuk)Co-founder and Executive Director, Rare and Undiagnosed Network (RUN) Vice Chair, Utah Rare Disease Day Council (RDAC) W www.rareundiagnosed.org E ginaszajnuk@gmail.com P (310) 883-4353 To Read: A mother’s...