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April 1, 2024 1:00 pm
0Justin Zanik has been the general manager of the Utah Jazz since 2019. AP Photo/Rick Bowmer SALT LAKE CITY — In the days before having cake for her husband’s 49th...
February 28, 2024 8:00 pm
0Contact information: Gina Zanik(Szajnuk)Co-founder and Executive Director, Rare and Undiagnosed Network (RUN) Vice Chair, Utah Rare Disease Day Council (RDAC) W www.rareundiagnosed.org E ginaszajnuk@gmail.com P (310) 883-4353 To Read: A mother’s...
April 29, 2023 4:36 pm
0“Imagine that you only get three years of good health and they are the three years you don’t really remember because you were too young.” – Ava Szajnuk...
April 29, 2023 10:00 am
0What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
April 29, 2023 8:00 am
0What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
April 26, 2023 8:00 am
0For More Information for April 29th, 2023: Undiagnosed Rare Disease Day #UndiagnosedDay What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and...
April 3, 2023 8:00 am
0For the video of the entire event visit Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters For additional information visit Rare Disease Day in Utah. Contact information: Gina...
March 23, 2023 9:00 am
0What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
March 23, 2023 8:00 am
0Increasing support and awareness worldwide for rare and undiagnosed patients and families. AscellaHealth 03/23/2023 With the collective dedication of advocates, patients, families, researchers and healthcare providers, thousands of...
March 21, 2023 8:00 am
0Press Release Community Leaders Unite to Provide Support and Resources for Thousands of Utahns with Rare Diseases Declaration Governor Spencer J. Cox’s Rare Disease Day Declaration for February...
