Archive for April, 2016
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A Dedicated Rare Disease Platform to Find Answers. Faster.
We have tirelessly searched for answers and have sacrificed nearly everything for us and for our loved ones with a rare or undiagnosed disease to receive the information and...
Senator Hatch: Thank you for your work on the Open Act!
Senator Hatch’s remarks from the hearing yesterday: “This amendment contains the provisions of the Open act, a bill I’m sponsoring with Senator Klobuchar to promote new therapies for...
One in a Billion: The Story of Nic Volker and the Dawn of Genomic Medicine by Mark Johnson & Kathleen Gallagher
The breathtaking story of a young boy with a never-before-seen disease, and the doctors who take a bold step into the future of medicine to save him—based on...
“Spiritual DNA is perfect”
Holly Ferrin: “It’s been a while since I have put thought and effort into being engaged with #LDSconf – in other words, it’s been a while since I’ve...