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October 21, 2016 8:20 pm
8Another update! (You guys are probably sick of me by now😅😉🙈) I recently got some results back from a muscle biopsy in Wisconsin and I saw a geneticist...
October 18, 2016 2:04 am
14Two years ago, my health journey started and my whole life changed. Instead of my life of competitive tumbling, running track, and being a straight A student. My...
October 7, 2016 5:41 am
7It was an honor to share my journey with Utah Rare at the Global Genes RARE Patient Advocacy Summit along with Sharon King of Taylor’s Tale and the NC Rare Disease Network. The breakout...
October 3, 2016 4:09 pm
6Friday, September 30th: Calen is up and down. He spiked a fever last night and was very uncomfortable but once fever broke he was great through the night....
October 3, 2016 3:15 pm
4Harlie Valdez has been in remission from Juvenile dermatomyositis (JDM).  However, new symptoms have been creeping up on Harlie this fall. She is scheduled for a MRI tomorrow at Intermountain...
October 3, 2016 3:02 pm
1Sunday, October 3, 2016 Rachel Nielsen and family appreciate all the love and prayers sent our way. This has been a very stressful and tiring week spent at...
October 2, 2016 9:31 pm
3Today was a good day. It was a really good day. It is one of those days that I will never forget. Ava, Oskar, Lucy and I stepped...