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October 31, 2016 9:26 pm
7To have someone say that they don’t know or that they think your pain is all in your head is so hard. You feel like you constantly have...
October 31, 2016 8:39 pm
4Calen is nearly 16 years old. The only thing he’s been “diagnosed” with is developmental delay and a chromosomal abnormality, the latter which was determined at age 11...
October 31, 2016 8:36 pm
3Please don’t write me off or tell me it’s all in my head simply because you don’t have answers for me. I came to the doctor’s because I...
October 31, 2016 8:09 pm
4EveryLife Foundation for Rare Diseases Nominees Federal Advocacy – Congressional Staff Nico Janssen, Legislative Assistant, Office of Senator Maria Cantwell, Lymphedema Treatment Act Molly McDonnell, Senior Health Policy Advisor, Office...
October 29, 2016 10:20 pm
5Please watch: Being Undiagnosed is a Diagnosis (until further noticed) It first viewed on the Rare Disease Report Gina Szajnuk, Co-Founder and Executive Director, Rare and Undiagnosed Network (RUN) talks...
October 25, 2016 8:39 pm
3October 25, 2016 8:34 pm
4October 25, 2016 6:36 pm
7As hard as this is for me to do, I am going to share with all of how my illness effects my life. I mentioned before that I...
October 22, 2016 9:55 pm
6We are so excited to donate a NBA Utah Jazz and NBA Milwaukee Bucks family experience to the Angel’s Hands Foundation’s 15th Annual “Friend Raiser” -Dinner/Auction tonight, October 22th....
October 21, 2016 9:22 pm
3Gina I hope you and the family have comfortably settled in and are enjoying the cooler Wisconsin weather. Now that basketball season and school is in full swing,...