Rare & Undiagnosed Network

May 5, 2018 10:46 am No Comments 16

RUN’s #RUNNBA: Utah Jazz National Anthem Buddies

Watch our #RUNNBA video and experience what it was like to be on the court of the Utah Jazz! In 2015, we started RUN’s NBA Initiative through the generosity of the Utah Jazz and the Larry H. Miller family. We were so excited to continue our initiative on March 17th by having our 30 children and their families with rare and undiagnosed diseases stand with #SACvsUTA for the National Anthem! We honored #RareAngels and a couple of inspiring undiagnosed patients that could not be on the court that night. Our RUN families attended the game through the generosity of tickets donated by Alec Burks and Ricky Rubio!

Link to #RUNNBA Utah Jazz Footage of our National Anthem Buddies

Thank you to everyone at the #UtahJazz family for your continued support of our family and our #RUNfamily!

Link to #RUNNBA National Anthem Buddies Court Video!

Link to #RUNNBA National Anthem Buddies Jumbotron Video!

Link to Learn more about our National Anthem Buddies!

Happy Birthday to Preston and Isabelle!

“Thank you SO much for the night to remember for a lifetime! My Myiles had SO much fun, he absolutely LOVES the Jazz so this was like a dream come true for him! When we went to go to our seats we were even helped to the wheelchair seating seats upstairs so Myiles could watch the game safely and comfortable as possible, AND THEY did this with us even asking if they had any accessible seats left! They just wanted him to be happy and watch the game!” -Alisha

“I cannot even find the words to express how amazing it is that not only did @rareundiagnosed and @utahjazz help us check this off our bucket list, but they TOPPED it, because he’s attended two games and been on the court for the Anthem both times. Never in my wildest dreams. Thank you RUN, and the Utah Jazz for making this night so special for our family, and all of the families who were able to have their miracle children recognized. It was a thing of beauty.” – Cashlynn