Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters
Press Release
Community Leaders Unite to Provide Support and Resources for Thousands of Utahns with Rare Diseases
Declaration
Governor Spencer J. Cox’s Rare Disease Day Declaration for February 28th, 2023
Photo Gallery by Justin Ahlmann
For additional information visit Rare Disease Day in Utah.
Contact information: Gina Zanik(Szajnuk)
Co-founder and Executive Director, Rare and Undiagnosed Network (RUN)
Vice Chair, Utah Rare Disease Day Council (RDAC)
E: ginaszajnuk@gmail.com
C: (310) 883-4353
To Read: A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed – by Lee Benson To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey To Read: “Push Through” by Ava Szajnuk RARE Cast by Global Genes: “A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition”
