Governor Spencer J. Cox’s Declaration of Utah Rare Disease Day on February 28th, 2023
Rare-Disease-Day-Declaration-2023.pdf (bioutah.org)
Contact information: Gina Szajnuk (Zanik)
Co-founder and Executive Director
Rare and Undiagnosed Network (RUN)
E: ginaszajnuk@gmail.com
C: (310) 883-4353
To Read: A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed – by Lee Benson To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey To Read: “Push Through” by Ava Szajnuk RARE Cast by Global Genes: “A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition”
