Born: June 4, 2006
Saved on June 15, 2013
Saved again on June 26, 2013
Saved again on July 3, 2013
Saved again on July 12, 2013

Ava was born with an arachnoid cyst. We discovered it when she was three years old.  At five years old, we were told that Ava has a genetic dysfunction, an autonomic neuropathy, small fiber polyneuropathy. Ava has been seen at over seven hospitals and over fifty specialists.  Her medical record is over seven hundred pages. She suffers pain daily. At this time, there is no treatment for Ava’s pain. In other words, Ava lives in the world of the unknown.