In 2018, RUN partnered with the University of Utah School of Medicine’s Pediatric Medicine Interest Group for an hour of experiencing what it is like to live with a rare or undiagnosed rare disease. Our speakers educated the future doctors and genetic counselors on what it is like to live in a diagnostic odyssey and the world of the unknown. Now you can watch our second annual event for #RUN2U from March 27th, 2019!

---

A very special thank you to Ava Szajnuk, Ethan Bruns, Steffani Stubbs, Shauna Bingham and Brook Bingham for sharing their story and to Dr. John Carey for moderating.

---

A very special thank you to Andrew Carey, Leslie Denson, Claire Lu, Samantha Derzon, Bradley Hunter, Madison Black and faculty advisor Dr. Jowaria Khan, MD with the University of Utah School of Medicine’s Pediatric Medicine Interest Group.

---

Moderator:

Speakers:

A very special thank you to Season Atwater, Aware of Angels, for her photography projects over the past five years. We shared her photographs at the event again this year!

---

Watch #RUN2U 2018!

---

Watch Fox13’s Utahns raise awareness for rare, undiagnosed diseases

---

Learn More about #UndiagnosedDay, Undiagnosed Rare  Disease Day

---

Governor Gary Herbert’s Declaration for Undiagnosed Rare Disease Day in Utah!

---

ABOUT RUN

RUN stands for the Rare & Undiagnosed Network. We’re a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision: To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.

Contact information:
Gina Szajnuk (Zanik)
Co-founder and Executive Director
E: ginaszajnuk@gmail.com
C: (310) 883-4353
To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey

---