This is a special invitation to RUN families to be a part of RUN’s upcoming video. RUN has been blessed with the opportunity to have a video donated by The Telling Well. Please join us at the National Ability Center on August 13th.

“Dear Gina,

We connected earlier this year about RUN and my project at work, The Telling Well, which creates video stories for non-profits. We are interested in featuring RUN and the wonderful and important work you do with RUN in a video. – Katie”
Again, this is an intimate event for our Rare and Undiagnosed families to share their diagnostic odyssey and to network about doctors, treatments and therapies. The activities will include the challenge course, archery, cycling and dinner catered by Dickey’s BBQ!  We will have volunteers there to help with the activities. The event is free and the entire family is welcome to join in the fun!

Saturday, August 13th, 2016

3:00p – 5:00p Activities

5:00p – 5:30p Dinner

National Ability Center

Address: 1000 Ability Way, Park City, UT 84060

Phone:(435) 649-3991

WHAT TO EXPECT

1. All participatns must wear closed toed shoes to participate in the activities
2. Please bring a jacket and dress for possible changing weather
3. Any minors must have their paperwork done online or signed by a parent if they do the paper version

If you are able to donate and bring bottled water, sodas/Gatorade, snacks, please email me at gina@rareundiagnosed.org

Please understand that the National Ability Center scholarships our RUN events. RUN has still not received funding and this is a very special honor from the NAC.  They believe in our Rare and Undiagnosed Community.

If you have not yet attended a RUN event at the NAC, please email me at gina@rareundiagnosed.org to receive the forms needed to attend the event. If you have any questions or concerns, please feel free to call me at (310) 883-4353.

Thank you all for your continued support, love and prayers.

Much love,

Gina