Calen is nearly 16 years old. The only thing he’s been “diagnosed” with is developmental delay and a chromosomal abnormality, the latter which was determined at age 11 via chromosomal microarray.

However, very little is still understood about how the chromosomal abnormality relates to his condition, and more importantly his prognosis. As parents, answers are our lifeblood. Genomic sequencing can provide these answers, giving us insights into how we can better care for our son medically throughout his life. We believe genomic sequencing should be standard of care for our son and all undiagnosed children.

-Josh Forsythe

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