Happy New Year’s Day to all of our family and friends. I went back through our 2016 pictures and landed on this picture this morning. As we are knee deep into our diagnostic odyssey, we will continue to look forward and focus on the future. We will not focus on the pain we endured during 2016 but on the gift of friends and family. We will not focus on the fact we do not have a diagnosis but on the fact we have teams across the country that care about our family. My rare advocacy efforts were worth every single minute of hard work just knowing that our RUN family and network have grown so much this past year. We had an incredible year in 2016 with Utah Rare, RUN, the Milwaukee Bucks and much, much more! We are so blessed to be on this journey with all of you. Praying for you all to have a safe and as healthy as you can 2017! Thank you again for your continued love, support and prayers.

Much love, Gina