“An Evening of Hope” an Upcoming Rare Disease Day Event Hosted by Recursion on February 27th
Please join us on Thursday, February 27 for our “Evening of Hope” Rare Disease Day event, hosted by organizations including Recursion, Rare & Undiagnosed Network (RUN), ARUP, BioHive, BioUtah, and the Utah Rare Disease Advisory Council (RDAC).
The event will kick off with refreshments and social time, followed by welcoming remarks from leaders like Tracy George (ARUP), Aimee Edwards (BioHive), and Kelvyn Cullimore (BioUtah). Don’t miss an engaging panel with patients and advocates sharing their powerful stories.
We hope to see you there! RSVP: https://lu.ma/itz526zb
With love,
Gina Zanik (Szajnuk) (Co-Founder/Executive Director of RUN), Ryan Kelly (Chief Communications Officer at Recursion) & the organizing committee
Contact information:
Gina Zanik(Szajnuk)
Co-founder and Executive Director, Rare and Undiagnosed Network (RUN)
Vice Chair, Utah Rare Disease Day Council (RDAC)
P (310) 883-4353
To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey
To Read: “Push Through” by Ava Szajnuk
To Listen: RARE Cast by Global Genes: “A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition”
