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April 3, 2023 8:00 am
0For the video of the entire event visit Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters For additional information visit Rare Disease Day in Utah. Contact information: Gina...
February 10, 2023 6:03 pm
0Rare-Disease-Day-Declaration-2023.pdf (bioutah.org) Contact information: Gina Szajnuk (Zanik)Co-founder and Executive DirectorRare and Undiagnosed Network (RUN) E: ginaszajnuk@gmail.comC: (310) 883-4353To Read: A mother’s unrelenting crusade to help those trapped in the wilderness of...
February 26, 2019 12:00 pm
22RUN is excited to continue on this journey with our rare and undiagnosed families with the generous support of our community in 2019! RUN Awareness Campaigns Rare Disease...
November 30, 2018 4:46 pm
4Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases...
March 5, 2018 8:40 pm
13Rare and Undiagnosed Network (RUN), a rare and undiagnosed disease patient advocacy organization, and the rare disease community of more than 350 million people worldwide, are preparing...
February 28, 2018 9:27 pm
16RUN’s 2018 Rare Disease Day events were incredible! Thank you to the Rare Disease Legislative Advocates and the EveryLife Staff for allowing me to share our journey and...
February 1, 2018 12:04 pm
13Thank you to Governor Gary Herbert for both of his Declarations Rare Disease Day on February 28th & Undiagnosed Rare Disease Day on April 29th Rare Disease Day...
February 28, 2017 4:43 pm
1The Szajnuk’s celebrated #RareDiseaseDay with a tea party planned by Lucy! She even drew on the white napkins the Undiagnosed awareness ribbon:) Priceless! However, we are missing our...
February 27, 2017 8:25 pm
3Thank you Boris Diaw for donating 60 tickets through the player donation program to RUN! RUN is currently looking for thirty rare and undiagnosed children to make an...
February 22, 2017 3:55 pm
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