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A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed
Gina Szajnuk’s kids suffer from undiagnosed disease; so does she. She is determined to find answers, and help By Lee Benson March 5, 2022 5:42 p.m. MST A mother’s unrelenting...
Celebrating our Undiagnosed Rare Disease Awareness Ribbon – created by Ava Szajnuk & designed by Erica Braymen in 2016
Undiagnosed Rare Disease Awareness Ribbon (2016): RUN’s first #UndiagnosedDay was on April 29th, 2016! We created the Undiagnosed Awareness ribbon from Ava Szajnuk’s drawing. Ava was eight years...
Update: UNDIAGNOSED IS OUR DIAGNOSIS: Living in a Diagnostic Odyssey x 4
By Gina Zanik (Szajnuk) My children: Ava, Oskar, and Lucy have been undiagnosed for the past 14 years as of the end of 2024. All three children and...
“An Evening of Hope” – Utah Rare Disease Day 2025 video – hosted by Recursion
Recursion’s “Evening of Hope” – Utah Rare Disease Day 2025 video! A special thank you again to all of our incredible speakers for being there this year to...
April 29th is Undiagnosed Rare Disease Day 2025!
What is Undiagnosed Day? April 29th is Undiagnosed Day. It is a day to celebrate those living with an undiagnosed rare disease and their families as well as...
Justin Zanik’s Anniversary of his kidney transplant from polycystic kidney disease (ADPKD)
As we celebrate the anniversary of Justin’s kidney transplant today from polycystic kidney disease (ADPKD), we would like to extend our deepest gratitude to University of Utah Health...
USA TODAY: NBA GM is savoring life one year after kidney transplant from living donor by Jeff Zillgitt
By Jeff Zillgitt USA TODAY Normal remains a part of Utah Jazz general manager Justin Zanik’s life. He travels for work and spends considerable time at the office and with...
Empowering Families: O’Ryan Health’s Mission to Revolutionize At-Home Pediatric Blood Sampling
Empowering Families: O’Ryan Health’s Mission to Revolutionize At-Home Pediatric Blood Sampling For families with medically fragile children, routine blood tests can be a challenging and stressful experience. Frequent...
RUN is celebrating World Kidney Day today!
The 2025 campaign #AreYourKidneysOK @worldkidney_day highlights the importance of #earlydetection in preventing and managing kidney disease. Learn more: https://worldkidneyday.org/2025-campaign/ Our journey: https://www.espn.com/nba/story/_/id/39826414/utah-jazz-general-manager-justin-zanik-fighting-life-kidney-disease Thank you all for your continued...
Join us at the BioHive Utah Live 2025 event on February 20th
We are honored to share our journey at the upcoming BioHive Utah Live 2025 event. Our oldest daughter, Ava, will be joining us as well. We are excited...
“An Evening of Hope” an Upcoming Rare Disease Day Event Hosted by Recursion on February 27th
Please join us on Thursday, February 27 for our “Evening of Hope” Rare Disease Day event, hosted by organizations including Recursion, Rare & Undiagnosed Network (RUN), ARUP, BioHive,...