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A mother’s unrelenting crusade to help those trapped in the wilderness of the undiagnosed

March 5, 2022 5:42 pm

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Gina Szajnuk’s kids suffer from undiagnosed disease; so does she. She is determined to find answers, and help By Lee Benson March 5, 2022 5:42 p.m. MST A mother’s unrelenting...

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Today is Undiagnosed Day!

April 29, 2024 8:00 am

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What is Undiagnosed Day? April 29th is Undiagnosed Day. It is a day to celebrate those living with an undiagnosed rare disease and their families as well as...

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Watch the #UndiagnosedDay Presentation by Ava Zanik (Szajnuk), Undiagnosed Rare Advocate

April 29, 2023 4:36 pm

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“Imagine that you only get three years of good health and they are the three years you don’t really remember because you were too young.” – Ava Szajnuk...

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Watch Gina Zanik (Szajnuk) on #UndiagnosedDay and the Challenges Faced by Patients | VibeCast Episode 9

April 29, 2023 10:00 am

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What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....

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Today is Undiagnosed Rare Disease Day! #UndiagnosedDay!

April 29, 2023 8:00 am

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What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....

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It’s official! Thank you to Governor Spencer Cox for his declaration of April 29th to be Undiagnosed Rare Disease Day in Utah! #UndiagnosedDay

April 26, 2023 8:00 am

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For More Information for April 29th, 2023: Undiagnosed Rare Disease Day #UndiagnosedDay What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and...

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Utah Rare Disease Day Event Recap Video by Recursion

April 3, 2023 8:00 am

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For the video of the entire event visit Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters For additional information visit Rare Disease Day in Utah. Contact information: Gina...

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Undiagnosed Day is coming up on April 29th!

March 23, 2023 9:00 am

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What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....

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Rare & Undiagnosed Network Provides Advocacy, Networking and Support for Patients and Families

March 23, 2023 8:00 am

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Increasing support and awareness worldwide for rare and undiagnosed patients and families. AscellaHealth 03/23/2023 With the collective dedication of advocates, patients, families, researchers and healthcare providers, thousands of...

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Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters

March 21, 2023 8:00 am

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Press Release Community Leaders Unite to Provide Support and Resources for Thousands of Utahns with Rare Diseases Declaration Governor Spencer J. Cox’s Rare Disease Day Declaration for February...

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Chronic. Invisible. Undiagnosed. Migraine.

March 11, 2023 12:14 am

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Chronic. Invisible. Undiagnosed. Once again, we thought we were going to lose Ava. We spent this past Monday in the ER as well as on January 20th. Her...

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