Recent Posts
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#RUN2U Event on April 27th: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Flyer donated by Erica Braymen, Ecosyse Do you know what it is like to live with an undiagnosed rare disease? Please join the University of Utah School...
Today is National DNA Day: #15for15 Started April 5th
About National DNA Day National DNA Day commemorates the successful completion of the Human Genome Project in 2003 and the discovery of DNA’s double helix in 1953. NHGRI...
#UndiagnosedDay Celebrates Undiagnosed Diseases Network (UDN)
“Solving Medical Mysteries Through Team Science” – UDN Zarko’s Story: Genomic Medicine In Action “Zarko Stanacev experienced years of mysterious debilitating symptoms. He applied to NIH’s Undiagnosed Diseases...
May 1st: “Two Rare Mama Bears” Podcast Launches!
“TWO RARE MAMA BEARS” PODCAST LAUNCHES TO FILL A UNIQUE NEED FOR RARE DISEASE COMMUNITY Like many so-crazy-it-just-might-work ideas, “Two Rare Mama Bears” was borne out of sleep...
May 3rd: Chase the Cure: Brenn Hill-Chase the Cure Benefit Concert
Brenn Hill-Chase the Cure Benefit Concert Dust off your cowboy boots…. This is a night you won’t want to miss! Brenn Hill will put on an amazing show....
123Genetix Launches #HackRare
123Genetix Launches #HackRare Crowdfunding Campaign to Advance Rare Disease Research ̶ Social enterprise looking to raise $20,000 (U.S.) on Indiegogo ̶ London, Ontario, Canada – April 19, 2018...
May 12th: Penelope Program Fundraiser: Tunes For Tosh 2.0 – 5k & 1 Mile Fun Run
Tunes For Tosh 2.0 – 5k & 1 Mile Fun Run by Shauna Bingham Please join us for a 5K or 1 Mile fun run on May 12th...
April 21st: Salt Lake City Half Marathon on Saturday
Flyer donated by Erica Braymen, Ecosyse Join us as we cheer on awareness for undiagnosed rare diseases! Please join the Rare and Undiagnosed Network (RUN) at the finish...
DHPS Foundation: Our genetics make us unique, our struggles and triumphs unite us.
Our genetics make us unique, our struggles and triumphs unite us. In April 2007, my husband and I found out we were expecting our first child. We were...
Isabelle George: Cute but Defective
Isabelle was born on St Patrick’s Day 2008. We call her the luckiest girl in the world. She came home on monitors because no one knew why her...