Recent Posts
Page 10 of 49
FDNA Releases New Findings for Sanfilippo Syndrome Resulting from Genomics Collaborative Partnership
FDNA Releases New Findings for Sanfilippo Syndrome Resulting from Genomics Collaborative Partnership Highlighting the continued success of an FDNA initiative accelerating breakthroughs in precision medicine May 14, 2018...
The Peterson Family: Chase “Jasper” Battle With Battens
Chase “Jasper” Battle With Battens Chase The Cure February 28, 2018 In 2015, after a recommendation from Chase’s 1st grade teacher we had Chase seen by a pediatric...
Watch #RUNNBA: Utah Jazz National Anthem Buddies
RUN’s #RUNNBA: Utah Jazz National Anthem Buddies Watch our #RUNNBA video and experience what it was like to be on the court of the Utah Jazz! In 2015,...
#RUNNBA: Meet our Utah Jazz National Anthem Buddies!
In 2015, we started RUN’s NBA Initiative through the generosity of the Utah Jazz and the Larry H. Miller family. We were so excited to continue our initiative...
April 29th is #UndiagnosedDay: Undiagnosed Rare Disease Day!
All rare diseases were once undiagnosed. Please help us raise awareness for #UndiagnosedDay. Thank you to Governor Gary Herbert for his declaration. This coming April 29th is officially...
Neglected Diseases Collaboration (NDC Medicine)
What iS NDC? Neglected Diseases Collaboration (NDC) is an international crowdsourcing network of doctors helping each other reach an accurate diagnosis for their patients, quickly and efficiently. NDC...
The Diagnostic odysseys: Undiagnosed is a diagnosis
The Diagnostic odysseys: Undiagnosed is a diagnosis By Eleonora Passeri, Anne Lawlor, Polly Moyer, and Amanda Riggs Rackerby. Photo by Alessia Torregrossa, Finestre di Assisi/Windows of Assisi ...
#RUN2U Event on April 27th: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Flyer donated by Erica Braymen, Ecosyse Do you know what it is like to live with an undiagnosed rare disease? Please join the University of Utah School...
Today is National DNA Day: #15for15 Started April 5th
About National DNA Day National DNA Day commemorates the successful completion of the Human Genome Project in 2003 and the discovery of DNA’s double helix in 1953. NHGRI...
#UndiagnosedDay Celebrates Undiagnosed Diseases Network (UDN)
“Solving Medical Mysteries Through Team Science” – UDN Zarko’s Story: Genomic Medicine In Action “Zarko Stanacev experienced years of mysterious debilitating symptoms. He applied to NIH’s Undiagnosed Diseases...