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Undiagnosed: An Update on the Szajnuks
Anyone living with an undiagnosed disease knows how hard it is every single day to persevere. When the disease is invisible, it is even harder because you have to...
Bio: Ava Szajnuk (Zanik)
Ava Szajnuk (Zanik) is a 17-year-old junior at Skyline High School in Salt Lake City, Utah. She was born a healthy child and hit all of her milestones...
The Undiagnosed Alliance: Mission and Goals
The Undiagnosed Alliance (the Alliance) is a coalition of undiagnosed rare disease stakeholders coming together with the purpose to foster unified advocacy among patient organizations, individuals, and stakeholders...
Taylor-12q14.1 Microdeletion Syndrome
Taylor-age 3 Diagnosis-12q14.1 Microdeletion Syndrome Photographs were donated by Season Atwater of Aware of Angels. This story first appeared on Aware of Angels. Our little guy Taylor...
Face to face: A Fairy-tale by Greg Lopez
Face to face: A Fairy-tale by Greg Lopez Face to face. Awestruck! As the saying goes, a picture is worth a thousand words. But it is also true that...
UNDIAGNOSED is a DIAGNOSIS: The Szajnuk’s Journey Updated!
UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk I have three children that are officially diagnosed as Undiagnosed. They have an Undiagnosed...
Rachel Nielsen: Admitted For Serious Infection and Prepping for Surgery
Kate Nielsen received a call this morning at 1:00a that her daughter, Rachel, does in fact have a bacteria infection in her central line. She will have it...
Rachel Nielsen: Harmons Cooking School Experience from Make-A-Wish
Special thanks to Chef Evan Francois and Photographer Renata Stone. Thank you to everyone at Harmons Cooking School. Thank you to Bob Leibo and everyone at Make-A-Wish. I...
Stockton-Undiagnosed
Stockton: Age 2 Diagnosis: Undiagnosed USA Stockton is our Undiagnosed Medical Mystery, though we prefer to call him our medical miracle. Though his root condition (undiagnosed genetic syndrome)...
Lashay-Undiagnosed
Lashay: Age 16 Diagnosis: Undiagnosed (POTS, Chronic Illness) USA After being exposed to all sorts of variables(even being bitten by a raccoon) in Costa Rica, Lashay returned home...