Recent Posts
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Rachel Nielsen: H.O.P.E (hold on, pain ends)
I’ve found that having a chronic illness is much like losing someone very close to you. People will say they understand your pain, they’ll tell stories about how...
MyGene2: Offering whole exome sequencing directly to families. Apply now!
MyGene2 is currently offering $825 for CLIA-certified whole exome sequencing (WES) right now! This is an incredible opportunity for families with a rare or undiagnosed disease! You will...
AllTrials is gathering stories of patients!
AllTrials is a non-profit focused on raising awareness of the tremendous need for higher standards in reporting all results of clinical research trials. Patients’ voices are incredibly important in this movement,...
We’re Partnering With The Mighty!
Rare Disease | The Mighty Partnership | Rare & Undiagnosed Network We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s...
The Genetics of Multiple Sclerosis and other Autoimmune Diseases by Carlo Chapelle
The Genetics of Multiple Sclerosis and other Autoimmune Diseases Many diseases arise from what are termed “autoimmune responses” in which the body turns against itself, targeting its very...
RUN Family Event at the National Ability Center on August 13th
This is a special invitation to RUN families to be a part of RUN’s upcoming video. RUN has been blessed with the opportunity to have a video donated by The Telling...
The Mighty: “So, You Want to Start a Rare Disease Nonprofit? Here’s 10 Things to Remember” by Gina Szajnuk
This story originally appeared on The Mighty So, You Want to Start a Rare Disease Nonprofit? Here’s 10 Things to Remember I am the mother of three children...
Online platform to embrace wide community of people affected by genetic diseases by Deborah Levenson
Connect. Ask. Answer. Discover. RUNmyDNA.com is going to launch soon! Great article on our new platform! We will be having a webinar soon for our early registered users!...
Running for RUN: Taking Awareness to the next level by Jesse Marimat
I never considered myself an athlete. Growing up, I had juvenile asthma, and struggled to run “the mile” in high school. The furthest extent of my physical activity...