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Page 21 of 48

Katie Nuffer Updates RUN on Life as a Senior in High School with MHE

May 24, 2016 4:08 pm

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I just wanted to give everyone an update about what has been going on in my life recently. This has been the first school year I have gone...

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Diagnosed but still undiagnosed? by Brittany Stangley

May 24, 2016 3:57 pm

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Have you ever waited and waited for what felt like forever to find something out? Years in the making and I finally got the news I’ve been waiting...

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Grayson McClure: “23 and Trapped in an Apartment” By JOHN M. GLIONNA

May 23, 2016 4:25 pm

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Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...

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Rachel Platten sends her love to our RUN families and our #RareTeens on her birthday!

May 22, 2016 4:31 pm

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Thank you Rachel Platten for sending your love to our Rare & Undiagnosed Network RUN families and our ‪#‎RareTeens‬!!! You are such an inspiration to the entire ‪#‎RareUndiagnosed‬...

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National Ability Center Volunteers Needed for their Barn Party on June 4th!

May 17, 2016 5:25 pm

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Volunteers Needed! Barn Party: June 4, 2016 Howdy Cowboys and Gals, We need a few more ranch hands to make the Barn Party a success. Can you help...

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RUN’s Undiagnosed Day Without Doctors at the National Ability Center

May 17, 2016 5:59 am

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This was an intimate event for our Rare and Undiagnosed families to share about their diagnostic odyssey and to network about doctors, treatments and therapies. The activities included...

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LAS VEGAS REVIEW-JOURNAL: Reno man’s suffering from undiagnosed disease also traps his mother By John M. Glionna

May 15, 2016 9:54 pm

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Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...

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Fox 13 News: Kearns teen battles rare, incurable disease to return to softball diamond by Tamara Vaifanua

May 15, 2016 10:36 am

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Kearns teen battles rare, incurable disease to return to softball diamond POSTED 10:14 PM, MAY 14, 2016, BY FOX 13 NEWS AND TAMARA VAIFANUA “KEARNS, Utah – A...

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National Ability Center Event today, May 14th: RUN’s Undiagnosed Day Without Doctors

May 14, 2016 5:16 am

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Time for some Rare FUN today! This is an intimate event for our Rare and Undiagnosed families to share their diagnostic odyssey and to network about doctors, treatments...

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“Racing for RUN” by Matthew Webster

May 13, 2016 11:18 pm

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“Racing for RUN” by Mathew Webster Maverick Modified #97 Driver: Matthew Webster, age 30 Spouse: Ciara Webster, age 27 Children: McKynlee Webster, age 5 I chose to “Race...

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