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The Mighty: “So, You Want to Start a Rare Disease Nonprofit? Here’s 10 Things to Remember” by Gina Szajnuk
This story originally appeared on The Mighty So, You Want to Start a Rare Disease Nonprofit? Here’s 10 Things to Remember I am the mother of three children...
Online platform to embrace wide community of people affected by genetic diseases by Deborah Levenson
Connect. Ask. Answer. Discover. RUNmyDNA.com is going to launch soon! Great article on our new platform! We will be having a webinar soon for our early registered users!...
Running for RUN: Taking Awareness to the next level by Jesse Marimat
I never considered myself an athlete. Growing up, I had juvenile asthma, and struggled to run “the mile” in high school. The furthest extent of my physical activity...
International Biosciences on Goldenhar Syndrome
International Biosciences on Goldenhar Syndrome International Biosciences offers a broad range of DNA testing, paternity testing, health testing and DNA ancestry services designed to provide you with clear answers to emotional questions. Whether...
Amy Muller shares her journey and wants to help RUN families through Accessible Systems
It was five years ago on a beautiful May afternoon when I received a phone call that would change my life. My daughter was at a friend’s end...
RUN is moving to Wisconsin! NBA Milwaukee Bucks here we come!
BUCKS NAME JUSTIN ZANIK ASSISTANT GENERAL MANAGER BUCKS NAME JUSTIN ZANIK ASSISTANT GENERAL MANAGER Posted: Jun 09, 2016 The Milwaukee Bucks today named Justin Zanik the team’s new...
Racing for RUN, National Ability Center’s Barn Party and Ava’s Birthday!
Thank you to Matthew Webster, Ciara Jo Webster and their entire family for their dedication to the Rare & Undiagnosed Network RUN and Utah Rare community. Thank you...
Katie Nuffer Updates RUN on Life as a Senior in High School with MHE
I just wanted to give everyone an update about what has been going on in my life recently. This has been the first school year I have gone...
Diagnosed but still undiagnosed? by Brittany Stangley
Have you ever waited and waited for what felt like forever to find something out? Years in the making and I finally got the news I’ve been waiting...
Grayson McClure: “23 and Trapped in an Apartment” By JOHN M. GLIONNA
Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...