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NBA Utah Jazz tickets go to Candice Moore. Friends of Stephanie and Gabe Valdez!

October 12, 2015 1:10 am

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Justin and I offered 4 NBA Utah Jazz tickets to the first person to call me tonight. The game is tomorrow night. Candice works for Prestige Financial, Larry...

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NBA Utah Jazz Tickets (4) for Preseason game vs. Portland Trailblazers available tomorrow night!

October 12, 2015 12:20 am

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Four NBA Utah Jazz tickets for the preseason game tomorrow night, Monday, October 12th, donated by Gina Szajnuk and Justin Zanik. You will sit in our season ticket...

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UTAH RARE DISEASE DAY 2016 is February 27th & February 29th. Planning has started! Join UtahRare.org

October 11, 2015 12:52 am

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UTAH RARE DISEASE DAY 2016 is coming soon!  February 27th & 29th!!  Please share and  “Like” the Utah Rare Facebook Page to find out more information about our upcoming events!...

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Please help the RARE COMMUNITY by Asking Senator Hatch to Lead the Formation of a Rare Disease Caucus

October 9, 2015 4:53 pm

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Please use this LINK: Ask Senator Hatch to Lead the Formation of a Rare Disease Caucus Link: Senator Hatch’s website   for more information about the Senator Dear Senator...

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Angel Benson, Miss Iron County, bought Ava Szajnuk’s drawing at the Art For Angels event by Aware of Angels, Season Atwater!

October 8, 2015 3:36 am

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Angel Benson: I am completely in love with this piece I got at the Aware of Angels Art for Angels show last weekend. It was drawn by an...

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Harlie Valdez at Physical Therapy Yesterday! So Proud of you!

October 6, 2015 10:20 pm

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Help for Harlie Harlie is currently in treatment today at Primary Children’s Hospital We are thinking of you! Sending love and prayers! And, I love the Jazz pic!  

Ciara Webster’s update: Congrats to Matt Webster! And, thank you to Harlie Valdez and her family!

October 6, 2015 8:15 pm

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Help for Harlie:  Ciara Webster: Update on my crazy life…. I had my first 2 day steroid infusion treatment last week. 1,000 MG for 2 consecutive days.. It...

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Lucy Szajnuk spent the night at the ER. The dog that attacked her was released today and slept in his own bed.

October 6, 2015 5:19 am

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Update: A lightbulb just went off in my head tonight as I watched the sunset from the beach. And, yes…it helped to get out of my hotel room...

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Lucy Szajnuk: In the ER at Primary Children’s Hospital. Please Pray.

October 6, 2015 1:22 am

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Lucy was sent home from school today because she complained that her entire body hurt.  When she got home her fever wasn’t very high. However, she continued to...

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To Global Genes: Thank you for your 2015 RARE Patient Advocacy Summit

October 4, 2015 1:17 am

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Dear Global Genes – Nicole Boice,  Carrie Ostrea  and your entire team, Words cannot express what an honor it was to receive a travel scholarship to attend your...

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