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Lucy Szajnuk spent the night at the ER. The dog that attacked her was released today and slept in his own bed.
Update: A lightbulb just went off in my head tonight as I watched the sunset from the beach. And, yes…it helped to get out of my hotel room...
Lucy Szajnuk: In the ER at Primary Children’s Hospital. Please Pray.
Lucy was sent home from school today because she complained that her entire body hurt. When she got home her fever wasn’t very high. However, she continued to...
To Global Genes: Thank you for your 2015 RARE Patient Advocacy Summit
Dear Global Genes – Nicole Boice, Carrie Ostrea and your entire team, Words cannot express what an honor it was to receive a travel scholarship to attend your...
Melissa Nearman shares her journey with Dysautonomia
My name is Melissa and I’m 26 years old. I always planned on working in the medical field and having a huge family. I’m really excited that this...
Aware of Angels: Art for Angels- Art Contest & Silent Auction happening now through Saturday, October 3rd, 2015 at 10:00p MST
Please support the Art For Angels-Art Contest & Silent Auction Happening Now! Art Contest Art for Angels- Art Contest & Silent Auction. We are so excited for this...
Harlie Valdez continues to fight for her life. Stephanie and Gabe, as well as their entire family, are determined to beat JDM.
Link to Help For Harlie The Valdezs: Stephanie and Gabe, as well as their entire family, are fighting JDM, juvenile dermatomyositis, along with Harlie. This isn’t just Harlie’s fight. Due to...
Gina Szajnuk’s Google Gmail account was HACKED. PLEASE do not open the “PrivateDoc.” Rare and Life is Not Fair x3
Gina Szajnuk: I am not saying, “Poor Me.“I’m not saying that at all! I’m actually to the point of saying, “Bring it on. Keep it coming.” And, as a friend...
Lucy Szajnuk’s Dog Attack: Rare and Life isn’t Fair: Open Letter regarding a NO DOG policy on all Soccer Fields in Park City, UT
My role in life is to advocate for my three children that are currently living in the medical world of the unknown. Our family lives on the sideline...
Brittany Stangley: “We were given this life for a reason.”
Hello everyone.. my name is Brittany. I am 24 years old, married, have one child and I am currently living undiagnosed.. I wasn’t born this way, as far...
Matthew Webster, Ciara’s husband, shares about his experience at the RUN Day Without Doctors hosted by the National Ability Center
Matthew Webster: I recently was invited to a RUN “rare & undiagnosed network” event September 12th with my family. It was a magical experience to see and speak...