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Winner – Best Documentary: Szajnuk (Zanik) Family Whole Genome Sequencing Mission

January 5, 2015 5:17 pm

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FERNLEIF PRODUCTIONS 2014 BACK IN THE BOX COMPETITION: Winner – Best Documentary – Szajnuk (Zanik) Family Whole Genome Sequencing Mission http://www.fernleif.com/Festival/2014Winners.html  

Goodbye 2014!

December 31, 2014 5:51 pm

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As I sit at my computer on New Year’s Eve, I realize that I am ready for 2014 to end. Goodbye! See ya! Not looking back. No way....

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Waiting for test results during the holiday season

December 30, 2014 6:25 pm

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It is not easy waiting for test results during the holiday season.  And, it is not easy receiving email alerts from “My Chart” regarding abnormal blood work and/or...

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Living with cold intolerance

December 30, 2014 6:24 pm

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Living in Park City is a blessing. It is absolutely beautiful. The snow finally came… Unfortunately, it does not make it easy for us to exist outside.  A...

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Winner! Award of Merit from the Accolade Global Film Competition

December 21, 2014 11:45 pm

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Gina Szajnuk (USA), The Szajnuk (Zanik) Family Whole Genome Sequencing Mission, Special Purpose Films, Children /Family Programming      

Two Hospitals Completely Disagree on my Diagnosis

December 20, 2014 12:38 am

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The “Top Hospital in the Nation” and my “home hospital” completely disagree on what is going on with me. I had to redo some of the previous tests...

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Diagnostic Odyssey. I am living in one. And, it is scary.

December 14, 2014 11:05 pm

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Diagnostic odyssey. It is exhausting. It is expensive. It is scary. I have dealt with living in the world of the unknown for the last four years with...

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Bertrand’s 7th Birthday with the Jazz

December 12, 2014 4:28 pm

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December 9th was a wonderful day for our family as well as the Might family. We celebrated Bertrand’s 7th birthday together at the Utah Jazz home game against...

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Waiting for Whole Exome Sequencing Results

December 3, 2014 12:26 am

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We are currently waiting for the whole exome sequencing results in a clinical setting from the Rare and Undiagnosed Program at the Children’s Hospital of Wisconsin. Dr. Howard...

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RUN is officially a Nonprofit!

December 3, 2014 12:15 am

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We received our Articles of Incorporation (Nonprofit).  We are in the process of obtaining our 501(c)(3) status from the Internal Revenue Service. IRS Pub 557 indicates that the...

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