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August 20, 2014 10:30 am
1PROFESSIONAL EXPERIENCE July, 2014 – Present RUN (RareUndiagosedNetwork.org) Park City, UT Co-Founder RUN stands for Rare & Undiagnosed Network. We’re a group of advocates, patients, families, researchers, healthcare...
August 16, 2014 11:30 pm
1One of my mantras as a physician is that while I can never truly know exactly what another person is experiencing, I should always strive to understand and...
August 16, 2014 11:24 pm
3About 30 years ago my mother was diagnosed with progressive type Multiple Sclerosis. She was a stay at home mom and raised me and my brother with no...
August 16, 2014 10:42 pm
2In a friendship that has spanned thirty years, though the ups and downs of life, you might wonder where will this begin? It is without question in my...
August 13, 2014 4:18 pm
142017 Update: The Szajnuk’s Diagnostic Odyssey Written in July 2014: To Whom It May Concern: I am a mother of three young children, and all three have been diagnosed...
August 4, 2014 2:39 pm
2On the day his oldest daughter turned 6, Justin Zanik flew out of Salt Lake City hoping he had just convinced the Utah Jazz to make a significant...
August 4, 2014 12:29 pm
16Ava Szajnuk’s Journey Born: June 4, 2007 Saved on June 15, 2013 Saved again on June 26, 2013 Saved again on July 3, 2013 Saved again on July...