Recent Posts
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#RUN2U Program: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Do you know what it is like to live with a rare or an undiagnosed rare disease? In 2018, RUN partnered with the University of Utah School of...
RUN’s NBA Initiative: Boston Celtics!
Thank you to the Boston Celtics for hosting the Paradis family for a pre-game experience on Sunday, March 24th. The Boston Celtics donated four tickets to Keegan and...
RARE Evolution
RUN is excited to have you be a part of our first RUN Educational Series with Recursion Pharmaceuticals. This event is designed to inspire, motivate, and spark collaboration among...
Honoring Charlee Nelson’s Fifth Angelversary
Charlee continues to guide RUN’s mission and has been such an inspiration to our family. She touched our hearts forever when we celebrated her one year Angelversary on...
HB435: Undiagnosed Children Insurance Coverage Bill Passed!
“A bill that I informally named “Marley & Tyler’s Bill” passed yesterday! It will help provide coverage to undiagnosed children. My recently diagnosed daughter and a boy named...
Utah HB435 Passed The House of Representatives!
Update: Senator David Buxton is supporting HB435 in the Senate March 5th, 2019 at 7:30p UPDATE: HB435, Undiagnosed Children Insurance Coverage, passed the Utah House of Representatives unanimously...
RUN Educational Series: Speaking Opportunity
Have you participated in a clinical trial and are open to sharing your experience at a future RUN Educational Series event on clinical trials? If you are a...
HB211: Rare Disease Advisory Council did not pass this year.
March 16th, 2019: As the Utah 2019 Legislative Session wraps up, we have reason to celebrate, and reason to keep hard at work. HB211, the proposal for a...
Press Release: Utah Jazz
Jazz to Recognize Children from Rare and Undiagnosed Network at March 2 Game Youth to Stand with Jazz, Bucks During National Anthem SALT LAKE CITY (February 28, 2019) –...
2019 RUN Awareness Campaigns & Programs
RUN is excited to continue on this journey with our rare and undiagnosed families with the generous support of our community in 2019! RUN Awareness Campaigns Rare Disease...