Archive for the ‘Uncategorized’ Category
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Katie Nuffer Updates RUN on Life as a Senior in High School with MHE
I just wanted to give everyone an update about what has been going on in my life recently. This has been the first school year I have gone...
Rachel Platten sends her love to our RUN families and our #RareTeens on her birthday!
Thank you Rachel Platten for sending your love to our Rare & Undiagnosed Network RUN families and our #RareTeens!!! You are such an inspiration to the entire #RareUndiagnosed...
National Ability Center Volunteers Needed for their Barn Party on June 4th!
Volunteers Needed! Barn Party: June 4, 2016 Howdy Cowboys and Gals, We need a few more ranch hands to make the Barn Party a success. Can you help...
The Northern Wasatch Association of Realtors still need applicants for their 2016 Have A Heart Home in Layton UT.
The Northern Wasatch Association of Realtors still need applicants for our 2016 Have A Heart Home in Layton UT. Our webpage has the application and qualifications listed. The...
Nonprofit helps those who suffer rare and undiagnosed diseases Papa Murphy’s will raise funds for families by Scott Iwasaki, The Park Record
SCENE Nonprofit helps those who suffer rare and undiagnosed diseases Papa Murphy’s will raise funds for families Scott Iwasaki, The Park Record POSTED: 04/26/2016 04:45:00 PM MDT...
#UndiagnosedDay is April 29th: Our Courageous Kids by Jennifer Summers
Jennifer Summers: “I just wanted to share some special people with you all! Here are some of the MOST COURAGEOUS KIDS that fight battles everyday of their life....
Rachel Nielsen: Diagnosed as Undiagnosed
Kate Michaelis Nielsen updates us on her daughter: Rachel Nielsen is a teenager diagnosed as Undiagnosed. She has struggled with getting proper care for the past 18 months...
Angel’s Hands Foundation Goes Above and Beyond
Mark Kristensen and his Angel’s Hands Foundation (AHR) generously donated towards our very own Rare Teen, Hailey Sampsel, for her travel to the three-week Comprehensive Pain Rehabilitation...
Rare Mom’s Letter to Hollywood: “Miracles from Heaven”
Dear Hollywood, As a mother of three rare and undiagnosed children and the Co-founder of the Rare & Undiagnosed Network (RUN), thank you for making the movie “Miracles...
Luca Catalano Gonzaga’s project: The Witness Image: The Story of Alex
Witness Image: The Story of Alex Living in shadows: A child’s rare disorder By Ashley Strickland, CNN CNN: Living in Shadows: A child’s rare disorder (CNN) Alex Gentile has...