Archive for the ‘Uncategorized’ Category
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A Major Cable Network Wants to Hear From You
A Major Cable Network is seeking individuals who are battling unknown medical conditions for a new ground-breaking television series. If you have run out of options and don’t...
May 12th: Penelope Program Fundraiser: Tunes For Tosh 2.0 – 5k & 1 Mile Fun Run
Tunes For Tosh 2.0 – 5k & 1 Mile Fun Run by Shauna Bingham Please join us for a 5K or 1 Mile fun run on May 12th...
Mediaplanet: “Undiagnosed” Persists as an Ominous Diagnosis for Rare Disease Patients
RUN recently participated in Mediaplanet’s Rare Diseases campaign where we united with likeminded industry leaders to educate Americans on the urgent need to gain public, private and federal...
Register now for our 4th Annual Utah Rare Symposium
Registration for the 2018 Utah Rare Symposium is now OPEN! Please share with your rare friends and rare disease community! We have a great day planned and are...
Rare Disease Day
The Szajnuk’s celebrated #RareDiseaseDay with a tea party planned by Lucy! She even drew on the white napkins the Undiagnosed awareness ribbon:) Priceless! However, we are missing our...
RUN’s Journey
My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...
RUN Event at Primary Children’s Outpatient Center on January 31st!
Gina (me) will be in Salt Lake City for a few days to watch the Milwaukee Bucks play the Utah Jazz next week! I could not pass up the opportunity...
“The love of my life…Becky Lockhart and Cruxfeldt-Jacob Disease” by Stan Lockhart
16 years before she died, Becky had a miscarriage at 10 weeks. The pregnancy was unexpected, but we were excited to have child number four in our home....
RUN is moving to Wisconsin! NBA Milwaukee Bucks here we come!
BUCKS NAME JUSTIN ZANIK ASSISTANT GENERAL MANAGER BUCKS NAME JUSTIN ZANIK ASSISTANT GENERAL MANAGER Posted: Jun 09, 2016 The Milwaukee Bucks today named Justin Zanik the team’s new...