Archive for the ‘Undiagnosed’ Category

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Utah: Rare Disease Day & Undiagnosed Rare Disease Day

February 1, 2018 12:04 pm

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Thank you to Governor Gary Herbert for both of his Declarations Rare Disease Day on February 28th & Undiagnosed Rare Disease Day on April 29th Rare Disease Day...

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Szajnuk Update: Ava Szajnuk and our Undiagnosed Rare Disease

November 17, 2017 3:37 am

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  Ava Szajnuk’s CT on November 16, 2017: Technology is beautiful. Ava recently fell and hit her head in gym class. She suffered a head injury and a...

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Stockton-Undiagnosed

March 2, 2017 9:45 pm

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Stockton: Age 2 Diagnosis: Undiagnosed USA Stockton is our Undiagnosed Medical Mystery, though we prefer to call him our medical miracle. Though his root condition (undiagnosed genetic syndrome)...

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Diagnosed but still undiagnosed? by Brittany Stangley

May 24, 2016 3:57 pm

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Have you ever waited and waited for what felt like forever to find something out? Years in the making and I finally got the news I’ve been waiting...

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Grayson McClure: “23 and Trapped in an Apartment” By JOHN M. GLIONNA

May 23, 2016 4:25 pm

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Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...

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