Time for some Rare FUN today! This is an intimate event for our Rare and Undiagnosed families to share their diagnostic odyssey and to network about doctors, treatments and therapies. The activities will include the challenge course, archery, cycling, dinner and a S’mores roast! We will have volunteers there to help with the activities. The event is free and the entire family is welcome to join in the fun!  Thank you to the National Ability Center for your continued support of RUN and our RUN families. Thank you to Dickey’s BBQ in Park City for catering and donating a portion of the cost to RUN. Thank you to Papa Murphy’s in Park City for donating pizzas and your incredible fundraiser for RUN! Thank you to Intermountain Primary Children’s Hospital as our platinum sponsor!!  Thank you to all of our sponsors! 

We will honor our Rare Angels today as well as one of our Rare Teens,  Aliyah Peedle. She is currently admitted at Primary Children’s Hospital dealing with major health issues right now. Our hearts hurts for the pain she is going through and she is in our prayers. Love you Aliyah!

If you have RSVP’d, please make sure you have received the excel sheet to fill out and that you have the correct forms signed to bring with you. If you forget the forms, you can fill them out at the NAC.  Every single person needs to fill out a form in order to attend. If you need the forms, please email gina@rareundiagnosed.org.

The weather looks great today and we are going to have some Rare FUN! We all deserve it!

Thank you to all of our sponsors!

RUN’s Rare Day Without Doctors last September