Search results for ‘Rachel Nielsen’

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Rachel Nielsen’s Children’s Hospital of Wisconsin Journey

March 10, 2016 4:02 pm

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Recently, my parents and I had the opportunity to go to the Children’s Hospital of Wisconsin to see 2 specialists to hopefully get more answers and treatments for...

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Rachel Nielsen: “Daughter of a King.”

February 7, 2016 6:01 pm

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I’ve always had problems growing up. When I was born, I was 6.5 lbs. When I was 4 years old, I was still the size of an 18...

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Kate Nielsen updates on her daughter, Rachel

October 3, 2016 3:02 pm

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Sunday, October 3, 2016 Rachel Nielsen and family appreciate all the love and prayers sent our way.  This has been a very stressful and tiring week spent at...

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Kate Nielsen shares her journey with her daughter, Rachel

November 20, 2015 7:56 am

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Kate Nielsen: Where to start? December, 2014, the ED, Emergency Department, dismissed Rachel Nielsen’s abdominal pain as being constipated. After sending her home to do a clean out, she...

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Rachel- Undiagnosed with EOSINOPHILIC ESAPHAGITUS/COLITIS

February 25, 2016 6:50 pm

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Rachel, born in 1999. The youngest of four children.  She has two brothers, a sister, and a sister-in-law. Her diagnoses are: EOE, EC, Gastroparesis, Delayed Motility, Orthostatic Intolerance, Neurogenic Bladder,...

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Today is Undiagnosed Rare Disease Day #UndiagnosedDay

April 29, 2021 8:00 am

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All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...

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Today is Undiagnosed Rare Disease Day #UndiagnosedDay

April 29, 2020 8:00 am

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Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...

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RUN’s NBA Initiative: Utah Jazz National Anthem Buddies on March 2nd, 2019!

May 4, 2019 12:00 pm

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The Utah Jazz honored 32 rare and undiagnosed children on the court as National Anthem Buddies on March 2nd, 2019. Derrick Favors, Rudy Gobert, Joe Ingles and Ricky...

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Today is Undiagnosed Rare Disease Day! #UndiagnosedDay

April 29, 2019 10:00 am

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Join us to honor the Undiagnosed Rare Disease Community today! All rare diseases were once undiagnosed. Today is RUN’s Undiagnosed Rare Disease Day! We hope to help raise...

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In Honor of #UndiagnosedDay: “Push Through” by Ava Szajnuk

April 26, 2019 10:00 am

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Hi. My name is Ava Szajnuk. Thank you for joining us today to learn about what it is like to live with a rare or undiagnosed disease. I...

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