Search results for ‘Ava’
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Katie Nuffer’s Update on living with MHE
Katie Nuffer: “Hey Everyone. It’s been almost 8 months since I broke my arm. Things are still pretty hard, and painful… However I can go out and push through...
Szajnuk’s family photo. June 2nd, 2013. What has changed since then?
Today is June 2nd, 2015. The family picture we always use is now two years old. What has changed in the last two years? Ava had no idea...
Much better than a hospital room!
Harlie Valdez and Ava Szajnuk enjoy a night out together: This past Saturday night was a great night at The National Ability Center’s Barn Party. For Harlie, it...
Harlie’s cousin: Keely Valdez’s Article on RUN for her school newspaper
Rare and Undiagnosed Network By Keely Valdez A once healthy child who may have done sports or stayed active, had a great sense of humor, or who was...
Handmade blankets donated to RUN families by Debby
From Megan: Debby started making beautiful minky blankets for her family members about 10 years ago. “I learned how to make these blankets from a friend who was making one for...
Mark Hoffman, Ph.D. Finalist in Medstro’s Google Wearables in Healthcare Challenge
Dear Mark, Thank you to you and your entire family for your continued support of our family. We were brought together through Justin’s mother, Carla Oliver. I remember...
Stephanie’s update on her daughter, Harlie Valdez
As a parent with a sick child in the hospital, we have to be at their bedside 24/7. We struggle to shower. We struggle to eat. We struggle...
Justin Zanik: Board of Directors/Secretary
Justin Zanik is entering his third season as general manager of the Utah Jazz, overseeing the day-to-day management of basketball operations. Zanik originally joined the Jazz as assistant...
Insurance company approves WES analysis for Oskar. Lucy Denied. Gina Denied.
Our insurance company just approved the WES (whole exome sequencing) analysis for Oskar. Great news! Thank you!!! However, they DENIED the WES analysis for both Lucy and Gina....
National Ability Center: From the Desk of the Executive Director, Ms. Gail Loveland
What an honor to be in their newsletter. We truly feel blessed to have found the National Ability Center and all of the wonderful people there. We look...